*** DEBUG START ***
*** DEBUG END ***

A desire to care

by
07 July 2017

IT IS notable that a child who has occasioned so fierce a legal argument is so well loved. Neither the parents of Charlie Gard nor their courtroom “opponents”, the medical team at Great Ormond Street Hospital, wish him any harm. The dispute has been over the best treatment for a boy who, all agree, is dying, as a rare mitochondrial disease takes its toll on his weak body. His parents wish to fly him to the United States for a treatment that might alleviate his symptoms; the developers of the treatment says it has not been tried on anyone whose condition is so advanced; and Great Ormond Street say that, while it is possible to keep Charlie alive and sedated, his life should be allowed to come to its natural end.

Even outside commentators have shown remarkable restraint, if one overlooks the emotive contributions to Twitter. Donald Trump tweeted: “If we can help little #CharlieGard, as per our friends in the U.K. and the Pope, we would be delighted to do so.” And a spokesman for Pope Francis spoke of his hope that “their desire to accompany and care for their own child to the end is not ignored.” The Church of England has been reticent of late on medical ethics. Were it looking for an example of what to say, the Pope’s comment would do well.

The case acts as a reminder that there is a shadow side to medical advances that allow doctors to keep people alive longer: the need to make a conscious decision about when to withdraw treatment. It is odd that switching off life-support systems is labelled “playing at God” whereas routinely saving lives in the operating theatre or through good nursing is not. A paper in the Journal of Medical Ethics in 2012 argued that, while “any solution should allow due deference to a family’s beliefs and shared involvement in decision-making,” the religion of the parents “should not influence the management of their child”. It is not clear, or very important, whether Charlie’s parents are motivated by religion or by the near-unbearable combination of hope and grief which attaches to such cases. What is clear is that all involved — parents, staff, and Charlie himself — deserve our prayers.

 

Small voice, indeed

WE MAY choose not to be quite so cutting about the Synod’s “still small voice” motion about the state of the nation as one of our correspondents (Letters), but it is pretty feeble. There is a synodical tradition of composing a bland motion to allow Synod members free rein, but many would wish to vote to say something more robust to a political class that is making such a hash of governing the country. If by “cohesion of the nation” the drafters meant fair and just treatment for the elderly and vulnerable affected by the Government’s austerity measures, increasingly the concern solely of exasperated clergy and hard-worked volunteer groups (see Comment: ‘From a transient to a permanent presence), they should say so. It is by no means clear that the restoration of calm at Westminster by some means or other is in the best interests of the whole nation.

Browse Church and Charity jobs on the Church Times jobsite

Letters to the editor

Letters for publication should be sent to letters@churchtimes.co.uk.

Letters should be exclusive to the Church Times, and include a full postal address. Your name and address will appear below your letter unless requested otherwise.

Forthcoming Events

Green Church Awards

Awards Ceremony: 26 September 2024

Read more details about the awards

 

Festival of Preaching

15-17 September 2024

The festival moves to Cambridge along with a sparkling selection of expert speakers

tickets available

 

Inspiration: The Influences That Have Shaped My Life

September - November 2024

St Martin in the Fields Autumn Lecture Series 2024

tickets available

 

SAVE THE DATE

Festival of Faith and Literature

28 February - 2 March 2025

The festival programme is soon to be announced sign up to our newsletter to stay informed about all festival news.

Festival website

 

Visit our Events page for upcoming and past events 

The Church Times Archive

Read reports from issues stretching back to 1863, search for your parish or see if any of the clergy you know get a mention.

FREE for Church Times subscribers.

Explore the archive

Welcome to the Church Times

 

To explore the Church Times website fully, please sign in or subscribe.

Non-subscribers can read four articles for free each month. (You will need to register.)