From Professor Michael N.
Marsh
Sir, - Some issues need to be raised
regarding the Revd Professor Robin Gill's remarks about Tony
Nicklinson's predicament (Comment, 13 July).
The emotive "massive" applied to his
pathology might be directed more usefully towards the disablements
resulting. Locked-in syndrome results from localised mid-brainstem
(usually pontine) damage, thereby impairing ascending sensory and
descending motor long tracts going to and from the cortical
areas.
"He is dependent . . .": yet thousands
of other patients with brain damage or cerebral degenerations also
need their bottoms wiping, urine collected, and dribble wiped away.
His wife declared a week ago in The Times that this robs
her husband of dignity. But that assertion, in one swipe, denies
the very dignity that accrues to all those who are often selflessly
and compassionately vouchsafed this needed form of care - now and
throughout the centuries - whether in religious houses, hospitals,
care homes, or hospices.
An Oxford colleague of mine has a
permanent tracheostomy and is fed through a percutaneous gastrotomy
tube. I don't think this takes his dignity away. Moreover, he is
still intellectually active and alive.
"Modern medicine is increasingly able
to prolong life" is, at best, a truism when applied to Mr
Nicklinson, and is often employed as a rather uninformed
rubber-stamp approach by the media. I have noticed that the media
invariably state that all Mr Nicklinson can do "is blink and move
his eyes". But note: he can also see, hear, smell, and think: his
full intellect allowed him to testify to the recent Demos report on
assisted dying.
Whether "modern medicine . . .
prolonged [his] life", to quote Canon Gill, is a moot point: surely
a respirator and feeding tube could hardly be deemed "high
technology". Thank goodness that other forms of advanced
technologies permit him, and others like him, to be able to
communicate.
To compare Mr Nicklinson with Tony
Bland is hardly a useful strategy to clarify these issues:
locked-in syndrome and a vegetative state are different conditions.
Bland's brain was totally damaged, and his cerebral hemispheres
contained a large collection of blood and necrotic neural debris.
Bland was virtually dead from the outset, given that his lower
brainstem centres were severely compromised. In other words, he was
in an extremely terminal vegetative state.
It is preferable not to use the
descriptor "permanent", because some of these patients improve and
even wake up. But we should be clear that such a possibility
requires the continuous dedicated nursing skill, care, and
compassion without which those improvements would not be realised
nor seen to be possible.
The critical questions for which Canon
Gill needs to find answers are: why did Bland and the almost
identical Italian case of Eluana Englaro (on a respiratory pump for
17 years) die within three to four days after the pumps were
switched off, and, more importantly, what are the control cases
(and they are available) by which those deaths could be more
sensibly compared and evaluated?
Contrary to Canon Gill, Bland and Mr
Nicklinson are by no means comparable cases, as the neurological
details given above specifically indicate. A more relevant example
would be Professor Stephen Hawking, who, for other reasons, has
little residual body function. Yet with eye blinks, computerised
techno- logies, and voice synthesiser, Professor Hawking watches
the universe, applauds work with the Hadron Collider, and still
busies himself with "God-at-the-extremes" cosmology.
We may not have a practical solution
for Mr Nicklinson (yet), but he does possess the power to die, and,
at his choosing - by refusing all fluid and calories. Why should
that be "barbaric", given that it would be his choice? The
"discomfort" that he thinks would ensue could be relieved
pharmacologically by doctors or family, without contravening
existing legislation. Furthermore, why is life so "intolerable" for
him, while Professor Hawking just gets on with the job despite
similar dysfunctions?
Given the innumerable photographs that
have appeared very recently in The Times and elsewhere, Mr
Nicklinson appears to be in good shape, despite his undoubted
disabilities. Comparatively, he may be better off than many of
those other helpless demented souls who know neither the day, time,
nor place, and for whose cause there has never been such elegant
publicity. So, after seven years, why does Mr Nicklinson still have
to be so enraged?
Canon Gill's assessment is neither
strictly accurate nor clear, and so, in my view, does not help much
in advancing beyond the dilemma of this, or allied, matters.
Assisted killing is illegal: judges cannot contravene the law with
a wink here and a nudge there.
There is one final point arising that
all of us might consider: are people "better off" dead than alive -
and why?
MICHAEL N. MARSH
Wolfson College
Oxford OX2 6UD